Sarah Ezekiel

I was diagnosed with Motor Neurone Disease in April 2000, whilst pregnant with my second child. I was 34 years old and the diagnosis changed my life irrevocably. My marriage collapsed and I am now divorced with full custody of my children, aged 12 and 9.

After an initial rapid progression I seem to have stabilised and lead a fairly active life. I'm still able to walk with assistance but cannot use my arms so receive 24 hour care. I operate my computer with a chin switch and use the program EZ Keys. I try not to think about my illness and live life as normally as possible.

As well as being a full time mother, I particularly enjoy writing. I’ve had some articles published in newspapers and magazines. I have given several presentations to raise awareness of MND. I'm also in an advert called Sarah's Story, which is a hard hitting portrayal of receiving a diagnosis of MND. Unfortunately, the advert has been banned on British TV, but is being shown in UK cinemas.

For more information, please visit sarahezekiel.com.

Entries by Sarah Ezekiel

Life is a window of opportunity and appreciating each day, whatever it may bring, is the key to fulfilment.

Today’s Brilliance from Sarah Ezekial

Imagine being told that your life is going to end very soon. Then imagine being told that before you die you are going to become progressively disabled. This is what I was confronted with ten years ago. This is not the type of news that most people will ever have to deal with, thankfully. But everyone will be challenged in their lives at some point, either mentally, physically or both. How should we deal with such challenges, especially life-changing events? I believe that our biggest enemy is fear. It can totally paralyse a person and stop us living a full… Read more.